eviemeg🍉

this might be the best trend to exist on this app🤣 #fyp #foryou #trend #disabled

seizure in town 29th Oct💙this is how we deal with seizures in public, its honestly no biggie to us anymore, we’ve done this for 7 years. i’m happy to answer any questions🩵🧠 #seizureawareness #autoimmuneseizure #lymedisease #encephalitis #awareness #foryou #advocate #braininflammation

AD disclaimer - this video is not what @Audible and I originally planned for this partnership, I was going to film my trip to Edinburgh, listening to the audiobook on the train on my way to an appointment. But of course life doesn’t always go to plan and after ending up in hospital, i thought the concept still works. So Behind Closed Doors came with me to hospital and kept me distracted❤️   Only a few things got me through that hospital trip. my mum, my paints, the other patients and Audible. When your brain is loud and life is chaotic, put your headphones in ❤️🎧    Listen now on Audible   #audible #behindcloseddoors #baparis #hospital

friday 13th of september i had 10 hours in total of cluster tonic clonics, it was over 24 hours before i was responsive again and ended up in hospital a week with daily severe seizures and full body dystonia attacks❤️‍🩹what people don’t talk about is health trauma. today sprung up on me, ‘just’ a day, friday the 13th, but the last one left a mental scar. this video shows the seizures and dystonia yes, but what it doesn’t show is the doctor kneeling down infront of me telling me over and over again he’s bringing the psychiatry team to see me. it doesn’t show the neurologist telling me i shouldn’t be in hospital, i need more fresh air. it doesn’t show them completely disregarding my diagnosis of late stage lyme disease & encephalitis, and refusing to even talk about it or even say those words. it doesn’t show me coming round from a seizure coughing due to feeling a tube at the back of my throat. or the doctor telling me i’m not even having seizures. it doesn’t show the tears and anger on my mums face after being transported to another hospital to talk to a neurologist who was horrible to me. it doesn’t show me arguing with the doctor and saying i don’t need a phsyciatrist and begging him to listen. so so much saddness from that week that has stayed with me, and my mum for that matter. i’m not sure how it’s been 3 months it feels like yesterday 💔 just venting. bit nervous to share but want to use my voice #healthtrauma #gaslighting #medicaltrauma #medicalgaslighting #ptsd #seizures #encephalitis #autoimmunedisease #autoimmuneencephalitis #warrioe #lymedisease #awareness

Replying to @Mack part 2 for you all😌thanks for the love on part 1!❤️ also guys lmk if you shave your toes 🦶 #trend #foryou #fyp #suspecttrend #disabled

my dancing videos look a little different now but that’s okay. i adapted this one to sitting down so if u wanna try it go ahead, it feels good❤️ *ik i’ll get comments so to clarify, i can stand, and i can walk very short distances and around my house, but i need my chair everytime we leave the house. i am having physio and on meds to try help but nothing is working yet* #fyp #wheelchairdance #disabled #autoimmunedisease #lymedisease #bartonella #encephalitis #autoimmuneencephalitis #foryou #positive

sit next to me & you’re in the danger zone😈 #tourettes #tourettessyndrome #tics @Max And Harvey

just had do this with Peter🤣 stepped it up a bit 🤣….. @Peter #foryou #fyp #suspecttrend #trend #seizures #disabled #foryoupagе #suspect

i’m really proud of how i handled this🤎 after having a rest in a cafe with mum, i got a fruit shoot (don’t judge me i didn’t want anything else🤣) and literally within 15 mins my tics escalated. we know certain drinks do this, such as pepsi max, and certain fanta flavours. this was my first fruit shoot in years so we’ve added another no no drink to the list! my guess is the sweetners. i absolutely love Robinsons, their squash is basically my safe drink. but apparently fruit shoots don’t agree with my immune system. my body was so uncomfortable, horrible discomfort of energy spreading through my limbs and abdominal muscles. this is how i know it was a tic attack, as everyday tics don’t feel like this. it’s been a while since my tics have gotten bad in public so it was difficult, the shop was busy due to it being saturday. but i just let it happen, not like i could stop it anyway. i just let people look, tic loud & proud🤎 thankfully it was pretty short thanks to emergency medication which is a muscle relaxant, the discomfort went away and we continued round the shop☺️ i last minute recorded a bit to show that these things can happen, and anyone could see this in the shops. it’s important to not stare, not make rude comments, and just get on with your day. ask if they need anything if you’d like. the reality of tourette’s is sometimes it plays up when we don’t want it to!🧡✨ #tourettessyndrome #tourettes #autoimmuneencephalitis #tics #PANS #braininflammation #autoimmunedisease #fyp #awareness #foryou

that’s my life, that’s my life♥️ #fyp #trend #seizurewarrior #autoimmunedisease #fighter #foryou #awareness #advocate

so i have a dystonic tremor now🙂 it comes in attacks, not constant. but it’s super sudden, no warning, so painful and upsetting😔 on the 14th of December i just randomly started shaking & jerking while my neck muscles were contracting. i thought it was a tic, we only realised what it was by the time i’d had 3 attacks. they’re so painful, especially in my neck which severely contracts and often my jaw & tongue too. i’ve had dystonia for 5 years now but never a tremor like this. i’m trying to film every attack to document them but i might have missed a couple. i’ve had 8 attacks in 10 days now, needing emergency meds every single time. it’s really upsetting me. i’m flaring so my mental state is different and other symptoms are bad too, i’ve noticed it’s mostly Lyme symptoms. always caught off guard when something new pops up😕 #dystonia #dystonictremor #dystoniawarrior #lymedisease #encephalitis #autoimmunedisease #dystoniaawareness #healthdiary #autoimmuneencephalitis

❗️seizures, hospital, fast images & upsetting footage❗️ THIS IS AUTOIMMUNE ENCEPHALITIS. encephalitis is inflammation of the brain, mine is in the basal ganglia🧠 it can cause hundreds and hundreds of symptoms, too many to fit in this video. and with lyme disease, and other infections, it intensifies everything 10X more and it becomes chronic, therefor harder & takes longer to get to remission. forever using my voice & making sure people are aware of this condition and what it can do❤️ #autoimmuneencephalitis #autoimmunedisease #bartonella #lymedisease #fyp #awareness #advocate #seizure #chronicillness #foryou #encephalitis

too true for so many of us💔the gaslighting i have experienced has been awful, i’ve been talked to in awful ways, completely dismissed and it’s like they didnt even try to listen. wouldnt even talk about my diagnosis of Lyme or encephalitis, nope it was a psychiatric issue💔video inspired by a post i shared to my insta story yesterday. #relatable #fyp #foryou #lymedisease #medicalgaslighting #chronicillness #autoimmuneencephalitis #lymewarrior #bartonella #autoimmunedisease

for those without instagram, we had to say goodbye to our sweet Lottie after 13 years yesterday. an inoperable mass was found and we had no other option. the kindest thing was to let her go💔i had 13 years of endless love and cuddles and im so so lucky to have had that. i was lucky enough to be Lottie’s favourite person, her safe space, the thing she looked for for comfort. it’s hard to accept she just isn’t here anymore. she’s not going to be in every livestream anymore, and my bed is empty💔thank you for the love at this time, my heart has had so much loss is a short time and i appreciate all your lovely messages❤️‍🩹🪽 #petloss #grief #petgrief #cat #foryou #fyp #petlosshurts #blackcat #catsoftiktok

thankfully i haven’t had to do this in like 3 years and won’t be in a hurry to do it again🙈 on another day this might of been no problem, but today my tics became severe after reacting to a drink. but we needed this photo so had to be done!😅🤎 #tourettes #tourettesawareness #tics #tourettessyndrome #PANS #encephalitis #fyp #disabilityadvocate #ticloudandproud

asked my nail artist for gingerbread nails and she DELIVERED🤎 #nails #christmasnails #gingerbread #nailart #acrylicnails #tics #tourettes #fyp #christmas

coraline part 2💙💛 #signlanguage #britishsignlanguage #BSL #acting #coralinejones #coraline #fyp #foryou #spookyseason #halloween

the most beautiful i’ve experienced in ages. felt so moving & spiritual, if you don’t get it thats okay, please keep those comments to yourself💗i was recording without much thought, just the struggle of pet grief, i still can’t believe this happened, that whisker has been in my bed with me for over a month and i had no idea🥺i cried my little heart out😭 i see you Lottie, my lovely girl, my shadow. thanks for letting me know you’re here🥹💕 #petloss #petgrief #foryou #fyp #petgriefisrealgrief #cat #petgriefawareness

i can confirm she infact was never there🥲 #seizures #autoimmuneencephalitis #foryou #fyp #medicalgaslighting #seizure

should i do a version but brands that ARE cruelty free?🐰🌱 #foryou #crueltyfree #againstanimaltesting #animalrights #rabbit #foryoupage #fyp